Hear from Nicole

Hear from Nicole

Hear from Nicole What condition does your child have?Our little girl is 23 months now, she has Russell-Silver syndrome. It’s a genetic condition that happens one in every 100,000. Russell-Silver syndrome has deformities, so it can be internal. She has...
Hear from Brooke

Hear from Brooke

Hear from Brooke What condition does your son have?Brooke: My son Cody has a very rare syndrome. The condition he has is called CFC which is that’s for short Cardiofaciocutaneous Syndrome and there’s only 17 cases in Australia, 17 kids in Australia with...